On Friday, October 11, 2019, friends of the APMRF gathered on Notre Dame’s campus to spend time together, and learn about the Parseghian’s fight to find a cure for Niemann-Pick Type C (NPC) disease.
The Parseghian’s were also joined by Cheryl and Paul Marcogliese and their two boys, Daniel and James. Special thank you to Cheryl who talked to the attendees about her family’s NPC journey. Both boys have NPC disease and honestly, they stole the show!
We also heard from Mary Galvin, Dean of the College of Science who talked about the importance of NPC and rare disease research at Notre Dame. And Cindy Parseghian provided updates of ongoing NPC research efforts and talked about the impact so many NPC children have on our community.
Thank you again to all that attended.
Together we will beat NPC!