2020 Michael, Marcia and Christa Parseghian Scientific Conference for Niemann-Pick Type C Research Conference- Virtual Symposiums

This past year, the annual in-person conference in Tucson, AZ was cancelled due to the COVID-19 / novel Coronavirus pandemic. Because sharing research progress is essential, we developed a new format in place of the Tucson conference. We hosted a series of virtual symposia throughout the month of May and June to provide key research updates from APMRF-funded researchers and invited speakers, clinical trial updates, and other select research topics. The symposia was hosted on a password protected Zoom platform and included talks and poster presentations.  Details can be found on our conference website: https://parseghianfund.nd.edu/events/annual-conference/

This conference has always been a phenomenal opportunity to gather families, scientists, and clinicians to share advances and exchange ideas related to curing NPC disease, which is why we were disappointed that we were not able to meet together this year. However, we were truly excited for the willingness of the NPC community to adapt to a virtual format. Over 275 attendees joined from around the world, and a high-volume of data was shared that will undoubtably bring us closer to a cure for NPC disease.

Thank you to all that participated and attended. Next year’s conference will be May 22-25, 2021.  We look forward to seeing you back in Tucson, AZ!