2019 Road to Discovery Bike Ride


About the 2019 Road to Discovery Bike Ride & the ESTEEM Legacy Project

The Ara Parsgeghian Medical Research Fund (APMRF) at Notre Dame has raised funds and awareness for Niemann-Pick Type C (NPC) through a variety of fundraisers including the cross-country & local Road to Discovery bike rides.  During these rides, we have visited over 150 cities, held over 125 events, a number of news stories and articles, and raised over $1.5 million for NPC disease research.

Over the past four years, the APMRF has partnered the University’s ESTEEM Masters of Science program to organize the annual bike ride as part of their Legacy Project, which aims to assist in a charity and help fundraise and promote their cause.  To learn more about the history of the ESTEEM Legacy Project please visit https://esteem.nd.edu/news-blogs/experiences/legacy-project/.

This year the APMRF and ESTEEM program will take on a 3-day bike ride on May 13-15, 2019. We will be riding from Notre Dame, IN – Michigan City, IN – Chicago, IL – Notre Dame, IN.  Additionally, there will be evening fundraising receptions in each city.

Learn more about the bike ride, and how you can support and participate below.

Give Now to support the 2019 Bike Ride

Cycling route and dates:

The ride will be about 300 miles.

Monday, May 13

  • Bike from Notre Dame, IN to Michigan City, IN
  • Reception and dinner at Shoreline Brewery

Tuesday, May 14

  • Bike from Michigan City, IN to Chicago, IL
  • Fundraising evening Reception at the Conrad Hilton in Chicago, IL

Wednesday, May 15

  • Bike from Chicago, IL to Notre Dame, IN (details may change)
  • Reception (TBD)
Road to Discovery Cycling Route

Monday, May 13

Michigan City, IN Celebratory Reception at Shoreline Brewery; 6:00 – 8:00pm

Please join us for a celebratory reception at Shoreline Brewery (208 Wabash St, Michigan City, IN 46360).   There is no formal program for the reception, but a great way to meet the students and Cindy Parseghian, Notre Dame Trustee and founder of the Ara Parseghian Medical Research Foundation.

*The evening reception is complimentary for all attendees.

Please email Sean at skassen@nd.edu if you wish to attend.

Tuesday, May 14

Road to Discovery Cocktail Reception at the Conrad Hilton, Chicago, IL: 5:30-8:00 p.m.

Please join us for a cocktail reception on the 19th floor of the Conrad Hilton (101 E Erie St, Chicago, IL). This is an opportunity to hear about the Parseghian family’s fight to find a cure for NPC disease, and learn more about how ESTEEM students are helping to raise funds for this cause.

In attendance will be students from the ESTEEM masters program, Cindy Parseghian, Notre Dame Trustee and founder of the Ara Parseghian Medical Research Foundation, and a few NPC families that are fighting every day for a cure.

*The evening reception is complimentary for all attendees.

Register Now

Road To Discovery Cycling Opportunity: Tuesday, May 14, 2019

If you feel up to the challenge, on Tuesday, May 14th, you can actually ride alongside the students.

Students will be riding from roughly 7am – 4pm (central time) from Michigan City, IN – Chicago, IL.  The route will be modified to ensure portions of the bike ride will be along the Lake Michigan coast and the Indiana countryside.

For riders, a suggested sponsorship of $200, $500, or $1000 to the Parseghian Fund at Notre Dame is appreciated.  Those who make a gift will have the option of purchasing a 2019 Road to Discovery Cycling Jersey and Bib Shorts for $150. *Your gift is credited your annual giving to Notre Dame.

We currently have limited space available for those who wish to stay in Michigan City, IN on Monday evening.

Additionally, bike storage and showers will be available in Michigan City, IN and at the Conrad Hilton in Chicago, IL.

Those who wish to ride will also need to sign a waiver.

Please email Sean Kassen at skassen@nd.edu if you wish to learn more and take part in the bike ride.

Corporate Sponsorships

We would like to invite you to join the ESTEEM class of 2019 in their efforts to raise funds and awareness for NPC.  We are seeking corporate sponsorships at the 3 levels below:

Sponsor logos will be included on participant t-shirts and on the ride website, the events, and all communications. For your reference, we have three designated sponsorship tiers.

Gold: $1,000+             Blue: $500+                 Green: $200+

For the Gold sponsorship, we will also name a bike after your company and highlight the bike and the rider on an exclusive video.

Give Now to support the 2019 Bike Ride

Thank you to our generous sponsors:


Please reach out to Sean Kassen at skassen@nd.edu if you have additional questions.

Thank you to ProForm for you sponsorship and support!