The Ara Parseghian Medical Research Fund
The Ara Parseghian Medical Research Fund at Notre Dame is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence.
The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren (Michael, Marcia, and Christa) were diagnosed with NPC in 1994. After learning the devastating diagnosis, Cindy and Michael Parseghian (parents of Michael, Marcia, and Christa) resolved to find a cure to save their children’s lives and formed a foundation with that aim. Medical research is the key to saving the lives of all those around the world afflicted with Niemann-Pick disease. You can help by donating to the Ara Parseghian Medical Research Fund at Notre Dame. Thank you.
During this week (April 17-24) your gift will be matched by a $1 million challenge fund. Go to this LINK, click on the Give & Vote button, and make a minimum of $10 gift. After you make your gift, you receive 5 votes and click on the box next to Ara Parseghian Medical Research Fund. Give your 5 votes to the APMRF and that will help us receive a large % of the challenge fund!!!
In the late-2000s, the foundation supported many early-stage research programs to investigate therapeutics for NPC disease. One such class of compounds were called cyclodextrins, and they showed dramatic improvements in cell culture studies and animal models with the NPC mutation. One of these therapeutics is now in a Phase 2b/3 clinical trial. Learn more by clicking on this LINK.
About the Fund
The APMRF at Notre Dame is fighting for a cure for Niemann-Pick Type C—a rare and neglected disease that effects the lives of children.
Through gifts made to the Fund, we have provided millions of dollars in research funding around the globe that is leading towards a cure.
Make a Gift
Your gift helps allows you to fight for the lives of children suffering from Niemann-Pick Type C through research grants and clinical trials.
“There will be no cure without research and no research without funding.”
– ARA PARSEGHIAN