Annual Conference

2021 Michael, Marcia, and Christa Parseghian Scientific Conference for Niemann-Pick Type C Research

Basic, translational, and clinical research towards a greater understanding and a cure for Niemann-Pick Type C disease.

June 26-29, 2021
Tucson, AZ

Covid-19 update: Thank you for your commitment to helping us find a cure for Niemann-Pick Type C disease. The APRMF typically hosts many events throughout the year, but due to the COVID-19 / novel coronavirus pandemic, most have been cancelled or postponed.

As we look towards 2021, we continue to monitor the situation. It is our hope that the vaccine roll out throughout the spring and summer is effective, and the number of cases declines nationally to allow us to host the event. 

Additionally, we will be following the University of Notre Dame guidelines to host events.  We are working with the Westin La Paloma to plan a conference that meets these guidelines and please know they are consistent with guidance offered by the Centers for Disease Control and Prevention, the U.S. Food and Drug Administration, and broader hospitality industry.  The guidelines will complement the State of Indiana and Arizona regulations regarding cleaning, sanitation, personal hygiene, physical distancing, and health monitoring.

Thank you and we look forward to seeing you in June at the Conference.

Please be well and feel free to reach out to Sean Kassen at skassen@nd.edu for any additional questions/concerns.

2021 Conference

June 26-29, 2021
Tucson, AZ

Parseghian Family

About the Conference

The schedule of the conference has not been set, but will include sessions on NPC1 structure and function, autophagy, cholesterol trafficking, lysosomal biology, therapeutics, gene therapy, biomarkers, and newborn screening. There will also be multiple poster sessions. 

All Abstracts must be submitted by May 1st. They should be written as lay descriptions for public dissemination and should be no longer than one page. We will select additional platform talks from the submitted abstracts.

For abstract submission, or if you have any questions, please send to Sean Kassen

Please contact Kim Kirkpatrick with any questions about the conference.


Register for the Conference

To register for the conference, click on the button below and scroll down to June 2021. Then click on the link to the conference.  

*Please note, this is an invite only conference and all attendees will be asked to sign a confidentiality waiver.  Please reach out to Sean Kassen at skassen@nd.edu if you wish to be added to the invite list.

Register for the Conference


Reserve your room at the Westin, La Paloma

For your convenience we have reserved a room block and special rate at the Westin La Paloma in Tucson, AZ.  Please click on the button below to book your room.