Annual Conference

2020 Michael, Marcia, and Christa Parseghian Scientific Conference for Niemann-Pick Type C Research
Basic, translational, and clinical research towards a greater understanding and a cure for Niemann-Pick Type C disease.

Dates and Location

 May 30 - June 2, 2020
Westin La Paloma in Tucson, AZ.

Please note, this is an invitation-only conference. Please contact Sean Kassen at if you wish to be included in the 2020 conference.


Register for the conference and book your hotel room

Please note that you must register for the Conference and a Hotel room separately.

To register for the conference  and book your hotel room using the buttons below:

Register Now
Book Your Hotel Room

Tentative Conference Schedule

The schedule of the conference has not been set, but will include sessions on NPC1 structure and function, autophagy, cholesterol trafficking, lysosomal biology, therapeutics, gene therapy, biomarkers, and newborn screening. There will also be multiple poster sessions. The tentative agenda is available below.

Saturday, May 30, 2020
Noon - 2pm Registration
2:00 - 5:45pm Session 1
5:45 - 6:30pm Opening Reception
6:30 - 8:00pm Opening Dinner
Sunday, May 31, 2020
7:00 am Breakfast
8:00am - Noon Session 2
Noon - 1pm Lunch
1:00pm - 2:40pm Session 3
5:00-6:30pm Poster Session #1
6:30pm Dinner
Monday, June 1, 2020
7:00 am Breakfast
8:00am - Noon Session 4
Noon - 1pm Lunch
1:00pm - 2:40pm Session 5
5:00-6:30pm Poster Session #2
6:30pm Closing Reception and Dinner; Remarks by APMRF
Tuesday, June 2, 2020
8:00 am Breakfast

Featured Speakers

  • Robert Keenan, Professor, University of Chicago
  • Adrian Salic, Professor, Harvard Medical School
  • Judy Storch, Professor & Executive Editor, BBA Molecular & Cell Biology of Lipids, Rutgers University
  • Arun Radhakrishnan; Associate Professor, University of Texas Southwestern
  • Mike Henne, Assistant Professor & Endowed Scholar, University of Texas Southwestern
  • Bjorn Pedersen, Associate Professor, Aarhus University


All Abstracts must be submitted by April 1st. They should be written as lay descriptions for public dissemination and should be no longer than one page. We will select additional platform talks from the submitted abstracts.

For abstract submission, or if you have any questions, please send to

Please contact Kim Kirkpatrick with any questions about the conference.