Ara Parseghian Medical Research Fund

This is who we Fight For

NPC disease is rare, but every child is worth Fighting For. There has been amazing progress in recent years that is positively impacting the lives of those afflicted by this horrible disease. The APMRF is currently funding 16 NPC research projects and we have seen many new and potentially life-saving therapies enter the clinic. Additionally, studying NPC is helping to unlock the mystery of many cholesterol related illnesses as well as viral infections including Ebola and coronavirus.

Please know every gift brings hope to those suffering from NPC disease. By donating now you can join the fight & help us find a cure for NPC disease.

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Who we are

The Ara Parseghian Medical Research Fund (APMRF) at Notre Dame is a non-profit organization dedicated to finding a treatment or cure for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. The Parseghian Fund was launched by Cindy and Mike Parseghian whose three children were diagnosed with NPC in 1994. They named the foundation in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach and grandfather to the children.

Meet the Director