The Ara Parseghian Medical Research Fund (APMRF) at Notre Dame is a non-profit organization dedicated to finding a treatment or cure for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994. The Parseghian Fund supports NPC-focused medical research grants, which is the key to saving the lives of all those around the world afflicted with NPC disease.

NPC disease is rare, but every child is worth Fighting For. There has been amazing progress in recent years that is positively impacting the lives of those afflicted by this horrible disease. The APMRF is currently funding 18 NPC research projects and we have seen many new and potentially life-saving therapies enter the clinic. Additionally, studying NPC is helping to unlock the mystery of many cholesterol related illnesses as well as viral infections including Ebola and coronavirus.  

The APMRF at Notre Dame is fighting for a cure for Niemann-Pick Type C—a rare and neglected disease that effects the lives of children.

Through gifts made to the Fund, we have provided millions of dollars in research funding around the globe that is leading towards a cure.

The APMRF at Notre Dame is currently funding 18 high-impact & collaborative grants to help find a cure for NPC disease.

- Ara Parseghian

Notre Dame Day
October 26 & 27

Road To Discovery Bike Ride

Parseghian Conference
May 22-25, 2021
Tucson, AZ

Parseghian Classic
June 11-14, 2021
Pebble Beach Resorts