The Ara Parseghian Medical Research Fund

The Ara Parseghian Medical Research Fund (APMRF) at Notre Dame is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence.

The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994. Medical research is the key to saving the lives of all those around the world afflicted with Niemann-Pick disease. You can help by donating to the Ara Parseghian Medical Research Fund at Notre Dame. Thank you.

Niemann-Pick Type C Research at Notre Dame

Parseghian Classic

PEBBLE BEACH, CA


The 2019 Parseghian Classic was held on June 21-24 and helped raise funds to find a cure Niemann-Pick Type C disease.  Thank you to those that attended.

The 2020 Parseghian Classic will be held on June 26-29.  Registration information will be available in the Fall.

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About the Fund


The APMRF at Notre Dame is fighting for a cure for Niemann-Pick Type C—a rare and neglected disease that effects the lives of children.

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Impact


Through gifts made to the Fund, we have provided millions of dollars in research funding around the globe that is leading towards a cure.

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Make a Gift


Your gift helps allows you to fight for the lives of children suffering from Niemann-Pick Type C through research grants and clinical trials.

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“There will be no cure without research and no research without funding.”

– ARA PARSEGHIAN

Patient Focused Drug Development


The NPC externally led Patient-Focused Drug Development (PFDD) meeting gives persons with NPC disease and their advocates the opportunity to provide the FDA, drug developers, and NPC stakeholders with perspectives from our community on a number of important issues.

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NPC New Born Screen Initiative


The new born screen for NPC disease is a collaborative initiative identify children with NPC at birth in an effort to provide them potential life-saving treatments before the damage from the disease occurs.

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2019 APMRF Grant Process & Awardees


The APMRF is proud to support funding for Niemann-Pick Type C disease research through a competitive grant process.

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