The Ara Parseghian Medical Research Fund

The Ara Parseghian Medical Research Fund (APMRF) at Notre Dame is a non-profit organization dedicated to finding a treatment or cure for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994. The Parseghian Fund supports NPC-focused medical research grants, which is the key to saving the lives of all those around the world afflicted with NPC disease.
Niemann-Pick Type C Research at Notre Dame
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This is who we Fight For

NPC disease is rare, but every child is worth Fighting For. There has been amazing progress in recent years that is positively impacting the lives of those afflicted by this horrible disease. The APMRF is currently funding 18 NPC research projects and we have seen many new and potentially life-saving therapies enter the clinic. Additionally, studying NPC is helping to unlock the mystery of many cholesterol related illnesses as well as viral infections including Ebola and coronavirus.  

Please know every gift brings hope to those suffering from NPC disease. By donating now you can join the fight & help us find a cure for NPC disease.

Donate Today

The 2020 Notre Dame Day competition concluded on October 27th at midnight. We are overwhelmed by the support and we not only hit our goal but doubled our goal...and then some! Words cannot describe the emotion we are feeling.  Thank you so much to all that supported the APMRF.

We raised over $318,000 and that will be matched by an anonymous donor...plus we had bonus challenge funds that will be added.  At a minimum we raised over $636,000 and all of the funds will go to support NPC research that will help us find a cure!

Thank you for joining our fight to find a cure for NPC disease.

2021 Parseghian Classic

Pebble Beach, CA
June 11-14, 2021

The Parseghian Classic is a golf outing that benefits the Ara Parseghian Medical Research Fund's fight to find a cure for Niemann-Pick Type C disease.

The 2021 Parseghian Classic will be held on June 11-14.

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About the Fund

The APMRF at Notre Dame is fighting for a cure for Niemann-Pick Type C—a rare and neglected disease that effects the lives of children.

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Impact

Through gifts made to the Fund, we have provided millions of dollars in research funding around the globe that is leading towards a cure.
See our Impact

Current APMRF funding

The APMRF at Notre Dame is currently funding 18 high-impact & collaborative grants to help find a cure for NPC disease.
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"There will be no cure without research and no research without funding."

- Ara Parseghian
Read Ara's Message
Read Cindy's Message

Events

Notre Dame Day
October 26 & 27

Road To Discovery Bike Ride

Parseghian Conference
May 22-25, 2021
Tucson, AZ

Parseghian Classic
June 11-14, 2021
Pebble Beach Resorts

NPC Community Updates

Niemann-Pick Type C Caregiver Preference Survey on Benefit Risk for Potential Treatments

October 28, 2020

Positive results reported from IntraBio’s multinational clinical trial with IB1001 for treatment of Niemann-Pick disease Type C

October 6, 2020

Orphazyme announces U.S. FDA acceptance and Priority Review of New Drug Application for arimoclomol for Niemann-Pick disease Type C

September 16, 2020
See All Stories