The Ara Parseghian Medical Research Fund
The Ara Parseghian Medical Research Fund (APMRF) at Notre Dame is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence.
The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994. Medical research is the key to saving the lives of all those around the world afflicted with Niemann-Pick disease. You can help by donating to the Ara Parseghian Medical Research Fund at Notre Dame. Thank you.
Parseghian Classic
PEBBLE BEACH, CA
The 2019 Parseghian Classic was held on June 21-24 and helped raise funds to find a cure Niemann-Pick Type C disease. Thank you to those that attended.
The 2020 Parseghian Classic will be held on June 26-29. Registration information will be available in the Fall.
About the Fund
The APMRF at Notre Dame is fighting for a cure for Niemann-Pick Type C—a rare and neglected disease that effects the lives of children.
Impact
Through gifts made to the Fund, we have provided millions of dollars in research funding around the globe that is leading towards a cure.
Make a Gift
Your gift helps allows you to fight for the lives of children suffering from Niemann-Pick Type C through research grants and clinical trials.
“There will be no cure without research and no research without funding.”
– ARA PARSEGHIAN
Patient Focused Drug Development
The NPC externally led Patient-Focused Drug Development (PFDD) meeting gives persons with NPC disease and their advocates the opportunity to provide the FDA, drug developers, and NPC stakeholders with perspectives from our community on a number of important issues.
NPC New Born Screen Initiative
The new born screen for NPC disease is a collaborative initiative identify children with NPC at birth in an effort to provide them potential life-saving treatments before the damage from the disease occurs.
2019 APMRF Grant Process & Awardees
The APMRF is proud to support funding for Niemann-Pick Type C disease research through a competitive grant process.
Events
October 11, 2019, Parseghian Fund Cocktail Reception
University of Notre Dame
May 29 – June 2, 2020, Parseghian Conference
Tucson, AZ
June 26-29 2020, Parseghian Classic
Pebble Beach Resorts