The Ara Parseghian Medical Research Fund at Notre Dame is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994. Medical research is the key to saving the lives of all those around the world afflicted with Niemann-Pick disease. You can help by donating to the Ara Parseghian Medical Research Fund at Notre Dame. Thank you.

Thank you for your commitment to helping us find a cure for Niemann-Pick Type C disease. The APRMF typically hosts many events during the springtime, but due to the COVID-19 / novel coronavirus pandemic, most will be cancelled or postponed. We are disappointed. However, we are thinking of alternate strategies, and will try to develop novel opportunities to come together later in the year.

We know it must be difficult for the NPC community to be separated. You can expect to continue to hear from us with updates from the APMRF. For now, please be well and feel free to reach out to Sean Kassen at skassen@nd.edu for any additional questions/concerns.

The APMRF at Notre Dame is fighting for a cure for Niemann-Pick Type C—a rare and neglected disease that effects the lives of children.

2020, Notre Dame Day - Postponed

2020 Road To Discovery Bike Ride
Postponed

Parseghian Conference
Virtual Symposium

June 26-29, 2020, Parseghian Classic - Cancelled
Pebble Beach Resorts