The Ara Parseghian Medical Research Fund

The Ara Parseghian Medical Research Fund at Notre Dame is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994. Medical research is the key to saving the lives of all those around the world afflicted with Niemann-Pick disease. You can help by donating to the Ara Parseghian Medical Research Fund at Notre Dame. Thank you.

Niemann-Pick Type C Research at Notre Dame

Covid-19 Update

Thank you for your commitment to helping us find a cure for Niemann-Pick Type C disease. The APRMF typically hosts many events during the springtime, but due to the COVID-19 / novel coronavirus pandemic, most will be cancelled or postponed. We are disappointed. However, we are thinking of alternate strategies, and will try to develop novel opportunities to come together later in the year.

We know it must be difficult for the NPC community to be separated. You can expect to continue to hear from us with updates from the APMRF. For now, please be well and feel free to reach out to Sean Kassen at skassen@nd.edu for any additional questions/concerns.

2020 Parseghian Classic - Cancelled

PEBBLE BEACH, CA

The Parseghian Classic helps to the Ara Parseghian Medical Research Fund fight to cure Niemann-Pick Type C research at the University of Notre Dame.  The 2021 Parseghian Classic will be held on June 11-14.
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About the Fund


The APMRF at Notre Dame is fighting for a cure for Niemann-Pick Type C—a rare and neglected disease that effects the lives of children.

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Our Impact


Through gifts made to the Fund, we have provided millions of dollars in research funding around the globe that is leading towards a cure.
See our Impact

Make a Gift


Your gift helps allows you to fight for the lives of children suffering from Niemann-Pick Type C through research grants and clinical trials.
Make a Gift

Current APMRF funding


The APMRF at Notre Dame is currently funding 18 high-impact & collaborative grants to help find a cure for NPC disease
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NPC Therapy Accelerator


A groundbreaking Initiative to foster collaboration between scientists and companies that is guided by the patient's perspective.
NTAI website

Patient Focused Drug Development


A program that brings the NPC patient's voice to the FDA, drug developers, and NPC advocates.
PFDD website

"There will be no cure without research and no research without funding."

- Ara Parseghian