The Ara Parseghian Medical Research Fund
The Ara Parseghian Medical Research Fund (APMRF) at Notre Dame is a non-profit organization dedicated to finding a treatment or cure for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994.
This is who we Fight For
NPC disease is rare, but every child is worth Fighting For. There has been amazing progress in recent years that is positively impacting the lives of those afflicted by this horrible disease. The APMRF is currently funding multiple research projects, international and domestic, and we have seen many new and potentially life-saving therapies enter the clinic. Additionally, studying NPC is helping to unlock the mystery of many cholesterol related illnesses as well as viral infections including Ebola and coronavirus.