The Ara Parseghian Medical Research Fund

The Ara Parseghian Medical Research Fund (APMRF) at Notre Dame is a non-profit organization dedicated to finding a treatment or cure for Niemann-Pick Type C (NPC) disease—a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. The Parseghian Fund is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NPC in 1994. 

Niemann-Pick Type C Research at Notre Dame

This is who we Fight For

NPC disease is rare, but every child is worth Fighting For. There has been amazing progress in recent years that is positively impacting the lives of those afflicted by this horrible disease. The APMRF is currently funding multiple research projects, international and domestic, and we have seen many new and potentially life-saving therapies enter the clinic. Additionally, studying NPC is helping to unlock the mystery of many cholesterol related illnesses as well as viral infections including Ebola and coronavirus.  

"There will be no cure without research and no research without funding."

- Ara Parseghian

Please know every gift brings hope to those suffering from NPC disease. By donating now you can join the fight & help us find a cure for NPC disease.

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