The Race for Adam Foundation, a volunteer non-profit organization dedicated to funding research projects to find a treatment and cure for Niemann-Pick Type C disease (NP-C) and related neurodegenerative disorders, began in 2005. In July of that year, Sean and Amy Recke’s seven-year old son, Adam, was diagnosed with NP-C, a genetic neurodegenerative disorder for which there is no cure. Due to the family’s kindness and respect for everyone, the community came together to help them; they are a family who has shown great patience, strength and hope in this time of urgency. Adam has touched the lives of everyone he has met, and continues to embrace life with a perfect smile. With the support of the community, a seed of hope has grown and continues to branch through events that will promote awareness and funding for research into NP-C and related neuro-degenerative disorders. The Foundation is named in honor of Adam Recke.
Learn more about A Race for Adam at the Foundation’s website.