PACING WITH PARKER
Please join us for a Dessert Auction to benefit Parker Miller and other children affected with Niemann-Pick Type C (NPC) disease.
Date & Time: November 26th at 7 p.m.
Location: The Ball Room at Tuscany Falls Clubhouse…Just in time for Thanksgiving! (16262 Clubhouse Drive, Goodyear, Az. 85395)
Please RSVP to June Miller at email@example.com or call (253) 951-2677
*Doors will be open at 6:30 p.m. for auction items. We would love it if you could bring a special dessert, wine basket or other item for the silent auction or just come and purchase a special Thanksgiving dessert.
About Parker Miller
If you spend any time with two-year old Parker, you will hear him roar like a dinosaur, sing songs (his favorite is the Jurassic Park theme song) and see him break into a contagious smile. If you bring up animals or show him a book, he will talk your ear off. He has an adventurous and brave personality and would make a great zoologist or paleontologist someday with his love of animals and dinosaurs. He adores and tries to be just like his older brother, Roman, and brings so much joy and energy to his father and mother, Dane and Michelle.
What you would not guess is at four months old, Parker was diagnosed with a terminal, rare disease called Niemann-Pick, Type C. He had a very large belly from late-stage liver cirrhosis and his doctor said the next step for him was to undergo a liver transplant. With the help of a great team of doctors at Phoenix Children’s Hospital and Rush University in Chicago, Parker was able to start an experimental drug at six months old and temporarily avoid a transplant. These twice-monthly IV infusions have given his liver the chance to regenerate and heal.
Unfortunately, there is no approved drug available to treat or cure NPC and the cruel, neurological decline is an unavoidable reality for Parker. NPC causes children to lose their ability to walk, talk, and eat on their own. Parker will follow suit and begin to lose skills he worked so hard to develop as well as the quality of life all children deserve.
It is due to your generosity and donations that Parker’s family has not given up on a future for him, and a chance for him to grow up and dig for the dinosaurs he cannot learn enough about.
About the Ara Parseghian Medical Research Fund (APMRF) at Notre Dame
Funds raised will support the Ara Parseghian Medical Research Fund (APMRF) at Notre Dame, which is dedicated to finding a cure for NPC disease. The Parseghian family launched the APMRF in 1994 when 3 of Cindy and Mike Parseghian’s children (former Notre Dame football coach Ara Parseghian’s grandchildren) were diagnosed with NPC disease. Since then they have raised over $50 million to support research, funded over 100 laboratories around the world, and now there are multiple potential life-saving therapeutics in clinical trials. You can learn more about the APMRF at https://parseghianfund.nd.edu/.
In June of 2019, Parker and his family attended the 2019 Michael, Marcia, and Christa Parseghian Scientific Conference for Niemann-Pick Type C Research. They were able to learn about the great advancements in NPC research and spend time with other NPC families. Parker quickly became a favorite at the conference with his charismatic smile and energy.